GENERAL RESOURCES FOR FAMILIES & CAREGIVERS

General Resources for Families and Caregivers for individuals with Down Syndrome

RESOURCES

Bereavement – Common features of grief in people with Down’s syndrome
Download PDF


TTC partners with MagnusCards to make taking transit more accessible

The TTC has partnered with Magnusmode for a new digital initiative that will make taking transit in Toronto easier for neurodiverse communities.MagnusCards™ by Magnusmode is a digital life skills app with guides to help autistic and neurodiverse persons perform everyday activities. The TTC has partnered with Magnusmode to develop five TTC MagnusCards decks, each of which focus on a different aspect of using transit. The app uses visual cues, step-by-step instructions and optional audio, to guide users through activities and tasks that may be unfamiliar to them.

The app is free to download in the Apple App Store or Google Play Store. The TTC MagnusCards are located within the ‘Travel’ section of the MagnusCards App, identified by an aeroplane icon. Persons can visit ttc.ca for more information.

Learn More


Easter Seals Ontario
Diaper grant
www.easterseals.org

Presidents Choice Children’s Charity
www.pcchildrenscharity.ca
Will provide funding for specialized equipment and to make home accessible
If you need assistance in filling out the application please contact Anna Taverna at anna.taverna@dsat.ca

Canada Revenue Agency Forms Call centre
Disablity Tax Credit
www.cra.gc.ca

Registered Disability Savings Plan
www.cra.gc.ca

www.canada.ca/en/employment-social-development/programs/disability/savings.html

Toronto Central Healthline
www.torontocentralhealthline.ca/displayservice.aspx?id=133585

Griffin Centre
1126 Finch Ave West, Unit 16
Toronto, ON M3J 3J6

Phone 416-222-1153
email: contact@griffincentre.org
http://www.griffin-centre.org/

Miscellaneous services

Aptus treatment services
www.aptustc.com
Offers a range of services for children, teens, and adults

EVENTS FOR CAREGIVERS

Research Study for Parents/Caregivers of Neurodiverse Individuals

This research study is approved by the Research Ethics Board at the University of Toronto. It is being conducted to explore the experiences and needs of parents/family members/caregivers* who are supporting a neurodiverse individual in navigating dating and romantic relationships. The study will be conducted by two occupational therapy students at the University of Toronto, supervised by a team of registered occupational therapists. Download More Info


Are you a family member of an adult with a developmental disability? The Azrieli Adult Neurodevelopmental Centre at CAMH is offering two 6-week programs for family caregivers in Ontario.

Mental health for adults with developmental disabilities during COVID: A virtual course for family caregivers

Dates: Every Tuesday, from March 1st to April 5th

Time: 12:30 pm to 2:00 pm EST

Join this 6-week course to learn strategies and practical tips on how best to help your loved one during COVID-19. The course open to all Ontario family caregivers of adults (18+) with developmental disabilities. The curriculum will specifically address the mental health challenges that this population can face during the COVID-19 pandemic.  Click here for more information and to register for the course.
Mental Health during COVID March 2022 Family Course


Caring for the caregiver: A mindfulness course for Ontario family caregivers of 

adults with developmental disabilities

Dates: Every Thursday, from March 3rd to April 7th

Time: 11:00 am to 12:30 pm EST

Join together with other caregivers in a program to gain self-care mindfulness skills. The program, open to all Ontario family caregivers of adults (18+) with developmental disabilities, will be led by Sue Hutton, a mindfulness teacher with 30 years of experience. The curriculum is a 6-week program that has been developed at the CAMH’s Azrieli Adult Neurodevelopmental Centre. Click here for more information and to register for the course.

Caring For The Caregiver Mindfulness Course Flyer


BACK TO SCHOOL RESOURCES

Wearing a mask to school [pdf]


DSRF and COVID-19

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COVID-19 Hospital Transfer Form

The COVID-19 Hospital Transfer Form is designed for family and other caregivers of adults with intellectual and developmental disabilities. In the event of a hospital admission for COVID-19, this form communicates essential information to hospital staff, including medical information, substitute decision-maker contacts and information about support needs. It promotes the accommodation of a person’s unique communication and behavioural support needs in health care. It is recommended to prepare this form in advance of a COVID-19 emergency and have it available upon a transfer to the hospital.

Download Form

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TTC Face mask exemption cards

The wearing of face masks and face coverings on the TTC is mandatory effective July 2, 2020. We recognize that not everyone is able to wear a mask, so the TTC has created a card that customers can use as a visual identifier for exemptions. These cards are provided as a courtesy by the TTC; customers who cannot wear a mask are not required to carry them.

More info about the exemption card

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FAMILY TIPSHEET: Wearing a Mask | Holland Bloorview


Surrey Place – COVID-19 Tools | Advance care Planning tool

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Two of a Kind Buddy Initiative

The Two of a Kind Buddy Initiative under the nonprofit organization Disable the Difference® is a pioneering initiative to close the distance that many of us are experiencing at the moment, especially for individuals with intellectual and developmental disabilities and other special needs. Especially during COVID-19, where many youth with special needs cannot go to school or receive at-home care, parents are bearing much of this extra weight and students aren’t able to be their best academically, socially, and behaviorally. We want to increase support for youth with special needs and their families, providing them with online opportunities to interact with others, receive mentorship, and have fun throughout the summer and into next year! We would love for you and your family to become a part of the Two of a Kind Buddy community!

Link to Application for Volunteers: https://forms.gle/8Wd29hxCrJvUZFEq6
Link to Application for Parents of Youth: https://forms.gle/X8vmaE5P2sP6ju497